Psychological Adjustment of Parents of Children Born with Atypical Genitalia 1 Year after Genitoplasty. Academic Article uri icon

Overview

abstract

  • PURPOSE: We examined the psychological adjustment of parents of children born with moderate to severe genital atypia 12 months after their child underwent genitoplasty. MATERIALS AND METHODS: Parents were recruited longitudinally from a multicenter collaboration of 10 pediatric hospitals with specialty care for children with disorders/differences of sex development and/or congenital adrenal hyperplasia. Parents completed measures of depressive and anxious symptoms, illness uncertainty, quality of life, posttraumatic stress and decisional regret. RESULTS: Compared to levels of distress at baseline (before genitoplasty) and 6 months after genitoplasty, data from 25 mothers and 20 fathers indicated significant improvements in all psychological distress variables. However, a subset of parents continued endorsing clinically relevant distress. Some level of decisional regret was endorsed by 28% of parents, although the specific decision that caused regret was not specified. CONCLUSIONS: Overall the majority of parents were coping well 1 year after their child underwent genitoplasty. Level of decisional regret was related to having a bachelor's level of education, increased levels of illness uncertainty preoperatively and persistent illness uncertainty at 12 months after genitoplasty but was unrelated to postoperative complications.

publication date

  • May 11, 2017

Research

keywords

  • Disorders of Sex Development
  • Emotional Adjustment
  • Genitalia
  • Parents
  • Plastic Surgery Procedures
  • Postoperative Complications
  • Reconstructive Surgical Procedures

Identity

PubMed Central ID

  • PMC7780837

Scopus Document Identifier

  • 85027725566

Digital Object Identifier (DOI)

  • 10.1016/j.juro.2017.05.035

PubMed ID

  • 28504212

Additional Document Info

volume

  • 198

issue

  • 4