Governing real-world health data as a public utility. Academic Article uri icon

Overview

abstract

  • The utility model offers a framework for ethical stewardship, patient empowerment, and distributed innovation.

authors

  • Haendel, Melissa A
  • Ahern, Ryan
  • Bailey, Kasie B
  • Bakas, Spyridon
  • Barth-Jones, Daniel C
  • Bohl, Alex
  • Bian, Jiang
  • Bourne, Philip E
  • Boyles, Rebecca R
  • Chute, Christopher G
  • Cimino, James J
  • Grannis, Shaun
  • Hartman, Terry S
  • Holko, Michelle
  • Hotaling, Nathan A
  • Housman, Dan J
  • Hunter, Lawrence E
  • Hurwitz, Eric
  • Phua, Jasmin
  • Kahn, Michael G
  • Kuzmanovic, Dario
  • Lemieux, Josh
  • Loomba, Johanna
  • Madlock-Brown, Charisse R
  • Mandl, Kenneth D
  • Mazumder, Raja
  • McMurry, Julie A
  • McMurry, Andrew J
  • Modi, Zubin J
  • Moffitt, Richard A
  • Mosa, Abu S M
  • Messina, Nicholas
  • O'Neil, Shawn T
  • Peterson, Josh F
  • Pfaff, Emily R
  • Phuong, Jimmy
  • Presskreischer, Rachel
  • Sanders, Lee
  • Sarker, Abeed
  • Thomson, Alastair
  • Unertl, Kim M
  • Walden, Anita
  • Weinstein, Jim

publication date

  • March 5, 2026

Identity

Digital Object Identifier (DOI)

  • 10.1126/science.aeb1178

PubMed ID

  • 41785358

Additional Document Info

volume

  • 391

issue

  • 6789